Showing posts with label ROP. Show all posts
Showing posts with label ROP. Show all posts

Sunday, January 17, 2010

Baby Jack Update, 1-17-10

Wow...I look at that picture from November, and I'm amazed at how much Jack has changed since then. Look at my cute little elf! Here he his, sucking on his beloved pacifier:


If you haven't noticed, I am not currently blogging, due to the situation with Jack and the incredible amount of time and energy I have been devoting to his care. I have been prepping our house for his eventual homecoming, which I am hoping will be mid to late February, as the doctors have suggested (nothing is written in stone, however). That has entailed lots of scrubbing, hauling boxes, moving furniture, etc., since he will still be rather fragile when he comes home (and for a long time afterward) and needs an exceptionally clean environment.

In addition, there are the daily visits to Jack that usually end up being 4-5 hours at a minimum, but are usually longer. The visits are wonderful, and filled with kangaroo time, teaching him to feed, and meeting with doctors, nurses, and various therapists. Add to that the seemingly endless pumping I must do (I'm usually good for 6-8 a day, although I should do more) and the continued daily life on the side that everyone experiences, which still includes job hunting and freelancing, and you can see why I am so overwhelmed most days. My bloodpressure continues to be an issue, although I'm hopeful I can get off the medication as I lose weight (which is another burden for me right now) and exercise more. There is just not enough time in the day, and I am always tired, but I'm a mommy and I have a purpose, and that keeps me going.

Anyhow, Jack is doing great at the moment. He is 11 weeks old, 36 weeks gestation, and weighs a whopping 1490 g (3 lb 4 1/2 oz). He has ROP (retinopathy of prematurity) but it's still at stage 2, zone 2, and hasn't really changed from last week. We are hopeful that it regresses like it does for many preemies. Jack is usually breathing room air (21% oxygen) and at a low flow (.9 L) on a nasal cannula. His feedings are up to 27 cc every 3 hrs, with fat and protein being added to my breast milk for weight gain. Jack is working with various therapists to learn how to eat and strengthen his muscles. Best of all, he is blossoming into a beautiful little baby boy, with a very vibrant personality...although we, as his parents, might be a little biased.

Thanks, as always, for the prayers and well wishes for our little "spitfire," as one of his nurses called him yesterday...it means the world to Pete and me. I love reading your comments, and it makes me feel good to know so many people out there care. I hope to update everyone more frequently than I have been, but I have a feeling I'll have my hands full for the next few months.

Hope you are all having a wonderful 2010!